Supporters
Discover the organisations who are supporting our plain language summaries initiative
FibroFlutters
Why Plain Language Summaries?
“Plain Language Summaries are important to succeeding with our advocacy efforts to encourage people to get more involved with research. If research is provided in an easier language, then more people are likely to start paying an interest and start to read it more. It is my belief that the doorway to patients learning and understanding what is happening regarding their diseases and illnesses is through Plain Language Summaries. They would provide our organisation an avenue to help disseminate relevant, and peer-reviewed, research to those that seek it.”
Cambridge Rare Disease Network
Why Plain Language Summaries?
“Living with a rare disease isn’t easy. When we consider our community living with rare conditions we like to think unique, extraordinary and outstanding. But being rare can also mean isolated, infrequent and uncommon, which in healthcare can lead to scattered and sporadic information and knowledge. What little is available is often curated by researchers and medical experts. Patients, their families and friends and the professionals who work with them need resources and information that’s accessible and helps them feel educated and empowered. PLSPS are a great tool to present high level research and information in a public-friendly, inclusive way to help rare patients take control of their condition.”
Ataxia & Me
Why Plain Language Summaries?
“Plain Language Summaries make a HUGE impact to the quality of life (QoL) of many patients, empowering them to be able to be more informed in their health condition”
Gene People
Why Plain Language Summaries?
“We support making information easier and clearer for everyone to understand. We believe this can empower patients and enable people to make more informed choices.”
Become a Supporter
If you’re interested in becoming a supporter of our plain language summaries initiative, email us directly by clicking on the button below.