Interested in becoming a supporter of our plain language summaries initiative? Contact us

FibroFlutters

“Plain Language Summaries are important to succeeding with our advocacy efforts to encourage people to get more involved with research. If research is provided in an easier language, then more people are likely to start paying an interest and start to read it more. It is my belief that the doorway to patients learning and understanding what is happening regarding their diseases and illnesses is through Plain Language Summaries. They would provide our organisation an avenue to help disseminate relevant, and peer-reviewed, research to those that seek it.”

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Ataxia & Me

“Plain Language Summaries make a HUGE impact to the quality of life (QoL) of many patients, empowering them to be able to be more informed in their health condition”

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Cambridge Rare Disease Network

“Living with a rare disease isn’t easy. When we consider our community living with rare conditions we like to think unique, extraordinary and outstanding. But being rare can also mean isolated, infrequent and uncommon, which in healthcare can lead to scattered and sporadic information and knowledge. What little is available is often curated by researchers and medical experts. Patients, their families and friends and the professionals who work with them need resources and information that’s accessible and helps them feel educated and empowered. PLSPS are a great tool to present high level research and information in a public-friendly, inclusive way to help rare patients take control of their condition.”

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Gene People

“We support making information easier and clearer for everyone to understand. We believe this can empower patients and enable people to make more informed choices.”

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