Measuring Fabry disease – a new patient-focused symptom questionnaire: a plain language summary
This Plain Language Summary of Publication article (PLSP) from Future Rare Diseases describes a new tool called FD-PRO (Fabry Disease Patient-Reported Outcome), which has been developed to track symptoms in people with Fabry disease, a rare inherited condition that can impact daily life and reduce life expectancy. This electronic diary allows patients to rate various daily symptoms on a 0-10 scale, including pain, sensory issues, and physical limitations. The study evaluated the effectiveness of this questionnaire in measuring symptom severity for Fabry disease patients.
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This PLSP is based on an article called ‘Fabry Disease Patient-Reported Outcome (FD-PRO) demonstrates robust measurement properties for assessing symptom severity in Fabry disease’ and was published in Molecular Genetics and Metabolism Reports.
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