The first international fibrodysplasia ossificans progressiva burden of illness survey was carried out to learn more about the physical impact, quality of life impact, and economic impact of the condition on people with FOP and their families. This new plain language summary in Future Rare Diseases discusses the findings from this survey.
Read the full article here.
The original article on which this summary is based is called ‘The Impact of Fibrodysplasia Ossificans Progressiva (FOP) on Patients and their Family Members: Results from an International Burden of Illness Survey’ and was originally published in the journal Expert Review of Pharmacoeconomics & Outcomes Research. The original article can be read here.